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Jacquie Young Newman hasn't added a story.
Hi! I'm Jacquie & been a MS Warrior for nearly two decades. Last few have been the hardest battle fighting MS. I'm beyond grateful for this opportunity to campaign in hopes of receiving an Alinker walking bike! I'm bit of a Dreamer, much like my grandfather, seeing myself leaving isolation to freedom & exploring on an Alinker. The 1st time I saw the Alinker introduced by Selma Blair a few years ago to the MS community, all I could think is WoW that looks so amazing! My mobility, due to MS, had already begun to progress. I watched the videos on how others were so easily taking less laboring walks compared to me using a walker or rollator. In addition to Multiple Sclerosis, osteoarthritis limits my mobility too. The combination of the two makes it difficult to walk a distance without fatigue or pain. At the time, the smallest model of the Alinker available was a tad big for my lack of height. Recently I noticed the Happy Small or 22" Alinker became available with much excitement & now is my time to fight on with an Alinker.
A lil' about us... I & my husband both live with the disability of MS. We 1st met at a MS support group. A few years later, we crossed paths again on a dating website. When we met, my mobility was better than his. Now it's the total opposite. We also have a super adorable Boston named Madlyn Sue, better known as Baddi Maddi. Actually she isn't really a bad girl, just a typical clown of a Boston Terrier. Maddi is now 10 years old & my emotional support pup. It has been awhile since I've been able to walk Maddi regularly. I'm hopeful for my wish to come true & have an Alinker to enjoy regular walks with my pup & hubby.
I was diagnosed of MS in 2004 & began participating in WalkMS after I regained my mobility a year later. Then became a MS Walk captain of my past team 'Walking Warriors' till 2016 when my mobility slowly began to deteriorate after a fall. The damage to my knees worsened my osteoarthritis making walking painful & difficult, never fully recuperating. Before, I enyoyed walking my pup regularly & exploring with my camera. Instead of PT when I sought out a specialist, I was sent home with pain meds, yep just pain meds (our wonderful 'sickcare' system). The Dr saw a larger sized person & assumed I didn't excise. I was so pained & devastated by the Dr's lack of treatment when I sought medical attention for rehabilitation. Feeling judged, discriminated to be given sickcare sent me down the path of depression & lack of self worth. Due to inactivity from my compounded mobility issues, in 2021 I became a Blood Clot survivor in addition to a MS Warrior. MS isn't a death sentence as some chronic illnesses, though secondary illnesses develop due to sedentary & complications from MS. I am very fortunate to be alive today. I'd love to be able to walk with less difficulty & believe the Alinker would help me regain the ability to get around better. I also enjoy gardening and photography as photography was my course of study in college. Recently, I haven't enjoyed my passion of photography due to the inability to get around as well that has affected my emotional stability or lack of with increased depression. Photography gave me great joy, enjoyment of exploring with my camera & exhibiting my art in galleries.
I truly believe the Alinker would assist me in my endeavors to get around better. To get back to my passion of photography, exploring and taking regular walks with my pup Maddi again. I'm a warrior & not ready to leave this earth yet. I would be beyond grateful for your to donation to my campaign for the ability to have an Alinker. And even if you can't help me by donating, would deeply appreciate sharing my Alinker campaign so others can see my story...thanks in advance, kindly me
This was my team message that adorned the back of our team tees I wrote when I was MS team captain of the 'Walking Warriors':
'I walk today, because someday I may not be able to. I walk today, in hope that someday may never come. I walk today, in hope for a cure of this disabling disease. I walk today, in hope that our future generation never endures MS. Through the funds raised today, may my hopes be fulfilled tomorrow. Join the movement to create a world free of MS. Come join in the efforts of the Walking Warriors. We are WalkMS to defeat MS.'
#alinkercampaign #mswarrior #wearestrongerthanms #MSAwareness #alinkerfamily #crowdfunding #chronicillness #thisisMS #BlodClotAwareness #bloodclotsurvivor #stoptheclot
The campaigns are about sharing. Most people have no idea what life is like when you live with MS or what happens after you have a stroke. Isolation is often a bigger problem than the symptoms of the disease itself. With the campaigns we can share and educate people, because it can happen to all of us. When we create a movement where people simply show up for each other, it might get a bit ‘safer’ and less ‘scary’ to engage with each other. Some people share their experiences on their campaign, others share their funds to support the campaigns. It is not about asking for money, it is creating an opportunity for people to learn and show up with #generosity. Being generous resonates with who we are as humans. We understand generosity deeply and when you practice it, you feel so much better
- The campaigns are in USD $, and due to the pandemic and price increase from September onwards $2950 USD. This includes the Alinker, shipping, process and campaign fees and our #AlinkerFamily support.
- The campaigns are all or nothing, no credit cards are charged unless the campaign reaches its goal.
- As soon as the campaign reaches its goal, we ship an Alinker (from direct stock or you'll be placed in line, delivery 6-8 weeks).
- Campaigners do not handle money. On disability or welfare, you cannot handle money without being penalized, but you can receive an Alinker !
- When the campaign raises more than the goal, the campaigner can chose another campaign where we then make the donation to, paying it forward, or get the balanced paid out, the choice is the campaigner's.
- If you want to start a campaign and are outside Canada or the USA, write an email to email@example.com. We can potentially get a shipping quote to where you live, and include that in the campaign goal, though we like to keep shipping at a minimum, so we will not ship anywhere beyond $250 shipping costs.
Together we build a movement of kindness and generosity, because we all need it
Why do we facilitate crowdfunding on our site?
We believe that the Alinkers should be available for everybody, regardless of income and people who start a crowdfunding campaign here, will have access to a life changing Alinker. Did you see how happy Selma Blair is using her Alinker? Her anxiety dropped from level 10 to 2 after she got back on her new Alinker. She is so happy and so on with this new invention, that she wants to create a fund to get people access to Alinkers. These crowdfunding campaigns are the first step to make Alinkers available for everybody. Selma Blair and BE are now putting their energy together to build a generous community around all the campaigners! The campaigners are people who allow others to show up generously, give them love!
Here is the Alinker segment as was aired on CBS Innovation Nation October 2019 - https://youtu.be/pk96VDkJ9NU
Why an Alinker?
Generally, medical devices are a technical solution for a body with a
The Alinker is designed for who we are, a whole human being, who wants to live an active and engaged life. We are a human, we have a body. Whether we miss a leg of have MS, it does not change who we are.
Yet the world we live in, treats us as a body with a problem, which creates a social divide between people based on their body, based on what we have, not on who we are. Isolation and loneliness are more devastating than the disease itself. So we need to show up for each other, acknowledge each other and be present to who we are.
These campaigns are here to bridge the gap between a high quality custom Alinker, and the people who live at the receiving end of a 'sickcare' system that drives people into poverty.
So, show up, be radically generous, it is something we humans really
When you read each story in each campaign, pause and imagine who that person is, and why they started the campaign, reach out to them, let them know they are surrounded and seen, heard and not alone. When we do that, we feel better and create a safer community where we know we can show up for each other. It connects us with our essence, we are radically generous creatures, we just got a little lost in systems that are not designed for our wellness.
Alinkers change lives, here are a few people
GO TO CROWDFUND, WHY, HOW, START
Who is the Alinker for?
The Alinker is for people who want to stay active, regardless of mobility challenges.
To operate and use the Alinker you must have the ability to:
- walk to some degree
- flex and extend your legs
- bear weight on one leg briefly while getting on and off the Alinker
- be consciously aware of your surroundings
- be aware of your ability and limitations
What is the Alinker?
The Alinker is an exceptionally cool, three-wheeled walking bike
for humans with mobility constraints. It’s not a medical device,
it’s a lifestyle tool, designed to enable users to lead active and
socially engaged lives — at eye level.
On the Alinker, users sit upright -- at eye level with standing companions. Weight is supported by the seat with no stress on the lower body, while handle bars provide additional support. Feet remain on the ground, keeping users stable and safe.
GO TO CROWDFUND, WHY, HOW, START
Together we'll make this work, in kindness and from the heart
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